Funding Medical Research Since  1989
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Welcome to our website 


We are a certified 501(c)(3) international non-profit organization focusing on funding medical research and advocating for newborn screening of adrenoleukodystrophy (ALD).

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Our Mission:

- Fund Medical Research for Myelin Repair
- Raise awareness of ALD & AMN
- Advocate for newborn screening of ALD
- Find a cure for demyelinating illnesses

About Us


Augusto and Michaela Odone founded The Myelin Project in 1989 to find a cure for their son Lorenzo's rare terminal disease called ALD. The Odones' story was dramatized in the 1992 Universal Studios film "Lorenzo's Oil" starring Nick Nolte and Susan Sarandon. Click here for more info.

News: 

Sacramento - June 18th, 2014 - AB 1559
The CA Senate Health Committee unanimously passed bill AB 1559. During our testimony the room fell absolutely silent - once finished, we received an emotional standing ovation thanks to emotive testimony of ALD patient Jeremy Hill Jr.  Click here to watch a video of our testimony. Next steps: Senate Appropriations, a Senate floor vote, and then it's off to Governor Brown! Click here for more information.

 Assembly Bill 1559
Newborn screening for ALD in CA.  
Click here for more information.
Take Action!
We can't wait to lose more children to this debilitating disease. #SignAB1559 #StopALD