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We are 
a 501(c)3 non-profit organization.
All donations are fully tax-deductible.


The Myelin Project was established in 1989 by Augusto and Michaela Odone for their son Lorenzo who suffered from ALD - a rare genetic myelin disease that deteriorates myelin in the brain and central nervous system.

Although not medical doctors, the Odones developed a treatment, Lorenzo's Oil now adopted throughout the world. The story of the Odones' struggle against ALD was dramatized in the 1992 Universal Studios release Lorenzo's Oil starring Nick Nolte and Susan Sarandon. For information on how to obtain the oil, click here.

~ What is ALD? ~
"Lorenzo &
His Parents"

By: Augusto Odone
In 1984, six-year-old Lorenzo was diagnosed with an incurable genetic disease. His parents refused to give up hope and with great determination set out to find a cure. Click here for a preview of "Lorenzo & His Parents" and get your copy today!
~ Partners ~
We are proud partners of the World Leukodystrophy Alliance, an international group of like-minded non profits. Learn more...
We are a proud partner of ALD Connect to advance research and care. Learn more
~ News ~
Hey Sylvia, what's the Holdup?!

Secretary of Health and Human Services Sylvia Burwell has the power, today, to begin the process of testing 630,000 U.S. newborns for ALD.
Sign the petition to tell her time is up!
Join the Fight!

Interested in joining our team? We are now accepting applications to join our Board of Directors! If you are a motivated individual with experience in the business, non-profit, or legal sector -
apply today.

$50,000 for Dr. Raymond's Lab

In partnership with Brian's Hope Foundation, The Myelin Project granted $50,000 to Dr. Gerald Raymond's lab at the University of Minnesota.

Dr. Raymond’s lab is developing new tools to diagnose, manage, and treat all aspects of ALD and improve the lives of those affected.